THE STORY & THE DETAILS
Hope. Awareness. Support.
THE HEART OF IT ALL
Carli lives with Rett syndrome. Her journey is one her family shouldn’t have to walk alone.
This is a place for everyone who wants to stand beside them — through a donation, a little keepsake, or simply showing up for our awareness walk.
One step. One act of kindness. One community around Carli.
Read her full BackaBuddy storySAVE THE DATE · 7 NOVEMBER 2026
An awareness walk for Carli and everyone living with Rett syndrome.
Bring your family, your friends and your kindness. We’ll walk together to show our support and help more people understand Rett syndrome.
WE’LL SEE YOU HERE
106 Apache Road
Onderstepoort, Pretoria, Gauteng
South Africa
Behind Obaro Wonderboom, near the N4 Wonderboom Airport offramp.
Venue map pin: −25.646470, 28.201274
From the map linked by the venue.
SEE THE PERSON. UNDERSTAND THE JOURNEY.
A diagnosis is only part of someone’s story.
Rett syndrome is a rare genetic neurodevelopmental condition, most often linked to changes in the MECP2 gene. It can affect communication, movement and everyday activities. Each person’s experience is different.
Seeing the person, including them and supporting their family can make a meaningful difference.
Learn more about Rett syndrome ↗From the International Rett Syndrome Foundation.
A FEW HELPFUL DETAILS
Yes. Entry for the 5 km awareness walk is R20 per person. Please pay by EFT to Capitec account 1423789170, held by C O’Reilly. Use your name and the number of people as the payment reference (for example, Tanya 3). Additional donations are optional.
Yes. Please submit a separate registration for each walker, with their name, surname, phone number, email address and payment status, so the organisers have an accurate attendance record. A group EFT should cover R20 per person.
The walk starts at 08:30 on Saturday, 7 November 2026 at Lavender Kontrei Mark.
The earrings cost R30 and can be purchased at the walk. Explore the earring design in 3D. To order a set in advance, call 082 805 1277 (+27 82 805 1277).
Absolutely. You can donate through BackaBuddy or by EFT using the details on this page. Sharing Carli’s journey is another way to help.
View donation options ↗We collect your name, surname, phone number, email address and payment status, and record attendance, only to administer entry fees and coordinate the Walk for Carli on 7 November 2026. Only our administrators can access this information. We do not publish participant lists or use your details for marketing. You can request a correction or removal from the organisers; their contact details will be posted here shortly. Records should be removed by the organisers once event administration is complete.